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The Case for Palliative Care for People with IDD and Dementia

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Wednesday, April 18, 2018

Start : 10:00 AM Pacific
End : 11:00 AM Pacific

Part of the National Alzheimer's and Dementia Resource Center webinar series sponsored by the Administration for Community Living.

Register now for FREE

Includes complimentary CEUs*

*This web seminar is approved for AoTA contact hours in addition to CEUs approved for all ASA web seminars

Pain management and palliative care are often difficult to access for people with both intellectual and developmental disabilities (IDD) and dementia. This web seminar uses recent work from the International Summit on Intellectual Disability and Dementia, which defined advanced dementia, proposed how palliative care services (including hospice) may be used and made recommendations for completing advanced directives and advance care planning prior to the extensive progression of dementia. Case examples will help illustrate the value of service integration efforts between intellectual disability and palliative care providers, specialized training for caregivers on end-of-life care and supports, and involvement of adults with intellectual disability early on in their advance care planning.

Participants in this web seminar will be able to:

  • Identify three ways in which palliative care may be helpful for people with IDD and dementia and their families;
  • Understand at least four differences in the experience of end of life for people with IDD and dementia;
  • Identify differences in the experience of advanced dementia for people with IDD and dementia as compared to others with dementia; and,
  • Understand three approaches to increasing participation of people with IDD and dementia in the development of their own advanced directives.


Mary Hogan is a member of the National Task Group (NTG) Steering Committee and was a contributing author to Aging and Down Syndrome: A Health and Well-Being Guidebook and its companion publication, Alzheimer’s Disease and Down Syndrome: A Practical Guidebook for Caregivers.


Philip McCallion is director and professor at Temple University’s School of Social Work, a consultant on IDD and dementia to the National Alzheimer’s and Dementia Resource Center and a member of the NTG Steering Committee.


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